vCJD Main Trust Update Minutes

As at 27 July 2022, the Trustees have had 67 meetings.

As at 27 July 2022 (the date of the last Trustees’ meeting), there were 178 victims of vCJD, according to the website of the National CJD Surveillance Unit. 409 claims have been made for £5,000 for individuals who have suffered an identifiable psychiatric injury lasting longer than one calendar month have been considered by the Trustees. 217 claims have been made for particular emotional hardship as a result of having or had a psychiatric condition. 146 of these have been approved and payments made. 45 claims have been made for particular financial hardship as a result of suffering a psychiatric condition. 27 of these have been approved and payments made.

The majority of the payments considered to date have been paid. As at 13 February 2023, the total amount paid in compensation is £42,171,332.85, and the total paid in fees and expenses is £17,256,955.84 (including legal fees, Trustees’ fees and disbursements such as psychiatrist’s and GP’s fees).

Following representations made by the Trustees to the Department of Health and consultation with the CJD Support Network, Contact a Family and solicitors who have acted for families of Victims in the past, the Department of Health agreed to a revision of the Scheme in early 2010. The revision simplifies the procedure for making payments to Victims and their families. It came into effect on 12 February 2010 and applies to all Victims diagnosed on or after 31 March 2010. A further revision was made in March 2012 which enabled the Trustees to increase the Basic Sum annually on 31 March each year to acknowledge the impact of inflation.

At the request of a number of Victims’ families, the Trustees also agreed on 23 June 2006 to reconsider the principles underlying the claims for care provided by families. Their response was sent to family solicitors on 7 September 2006.

Abbreviated Minutes

Please click on the links below for the Abbreviated Minutes.

1. 22nd February 2002
2. 15th March 2002
3. 26th April 2002
4. 14th June 2002
5. 28th June 2002
6. 19th July 2002
7. 26th/27th September 2002
8. 13 December 2002
9. 31 January 2003
10. 21 February 2003
11. 14 March 2003
12. 16 May 2003
13. 13th June 2003
14. 25th July 2003
15. 19 September 2003
16. 31 October 2003
17. 19 December 2003
18. 6 February 2004 (Principles for claims for particular financial or emotional hardship)
19. 19 March 2004
20. 7 May 2004
21. 23 June 2004 (relating to Newsnight programme and other media interest.)
22. 23 July 2004
23 8 October 2004
24 2 December 2004
25 28 January 2005
26 18 March 2005
27 13 May 2005
28 1 July 2005
29 7 October 2005
30 9 December 2005
31 27 January 2006
32 7th April 2006
33 25th May 2006
34 23 June 2006
35 16 August 2006
36 6 October 2006
37 24 November 2006
38 23 February 2007
39 30 March 2007
40 15 June 2007
41 7 September 2007
42 7 December 2007
43 29 February 2008
44 6 June 2008
45 10 October 2008
46 6 February 2009
47 12 June 2009
48 2 October 2009
49 12 February 2010
50 11 June 2010
51 5 November 2010
52 18 February 2011
53 27 July 2011
54 25 November 2011
55 23 March 2012
56 5 October 2012
57 12 April 2013
58 25 October 2013
59 19 March 2014
60 17 October 2014
61 23 April 2015
62 6 January 2017
63 12 April 2018
64 12 April 2019
65 5 March 2020
66 7 May 2021
67 27 July 2022