vCJD Main Trust Update Minutes

As at 16 May 2024, the Trustees have had 69 meetings.

As at 16 May 2024 (the date of the last Trustees’ meeting), there were 178 victims of vCJD, according to the website of the National CJD Surveillance Unit. 409 claims have been made for £5,000 for individuals who have suffered an identifiable psychiatric injury lasting longer than one calendar month have been considered by the Trustees. 217 claims have been made for particular emotional hardship as a result of having or had a psychiatric condition. 146 of these have been approved and payments made. 45 claims have been made for particular financial hardship as a result of suffering a psychiatric condition. 27 of these have been approved and payments made.

The majority of the payments considered to date have been paid. As at 29 April 2024, the total amount paid in compensation is £42,171,332.85, and the total paid in fees and expenses is £17,345,066.82 (including legal fees, Trustees’ fees and disbursements such as psychiatrist’s and GP’s fees).

Following representations made by the Trustees to the Department of Health and consultation with the CJD Support Network, Contact a Family and solicitors who have acted for families of Victims in the past, the Department of Health agreed to a revision of the Scheme in early 2010. The revision simplifies the procedure for making payments to Victims and their families. It came into effect on 12 February 2010 and applies to all Victims diagnosed on or after 31 March 2010. A further revision was made in March 2012 which enabled the Trustees to increase the Basic Sum annually on 31 March each year to acknowledge the impact of inflation.

At the request of a number of Victims’ families, the Trustees also agreed on 23 June 2006 to reconsider the principles underlying the claims for care provided by families. Their response was sent to family solicitors on 7 September 2006.

Abbreviated Minutes

Please click on the links below for the Abbreviated Minutes.

1.22nd February 2002
2.15th March 2002
3.26th April 2002
4.14th June 2002
5.28th June 2002
6.19th July 2002
7.26th/27th September 2002
8.13 December 2002
9.31 January 2003
10.21 February 2003
11.14 March 2003
12.16 May 2003
13.13th June 2003
14.25th July 2003
15.19 September 2003
16.31 October 2003
17.19 December 2003
18.6 February 2004 (Principles for claims for particular financial or emotional hardship)
19.19 March 2004
20.7 May 2004
21.23 June 2004 (relating to Newsnight programme and other media interest.)
22.23 July 2004
238 October 2004
242 December 2004
2528 January 2005
2618 March 2005
2713 May 2005
281 July 2005
297 October 2005
309 December 2005
3127 January 2006
327th April 2006
3325th May 2006
3423 June 2006
3516 August 2006
366 October 2006
3724 November 2006
3823 February 2007
3930 March 2007
4015 June 2007
417 September 2007
427 December 2007
4329 February 2008
446 June 2008
4510 October 2008
466 February 2009
4712 June 2009
482 October 2009
4912 February 2010
5011 June 2010
515 November 2010
5218 February 2011
5327 July 2011
5425 November 2011
5523 March 2012
565 October 2012
5712 April 2013
5825 October 2013
5919 March 2014
6017 October 2014
6123 April 2015
626 January 2017
6312 April 2018
6412 April 2019
655 March 2020
667 May 2021
6727 July 2022
6829 June 2023
6916 May 2024